What We’ve Learned
ImagingNMD is closely working with pharmaceutical companies to facilitate clinical trials of new drugs for various muscular dystrophies.
Recent Resources
Videos & Webinars
Development of Imaging Biomarkers for Becker Muscular Dystrophy
Pat Chat with Krista Vandenborne
Additional Resources
Sign up for regular updates and news from leaders in Becker and Duchenne research.
Fighting to end Duchenne, PPMD accelerates research, raises their voices to impact policy, demand optimal care for every single family, and strives to ensure access to approved therapies.
The #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. MDA works to accelerate research, advance care, and advocate for the support of families living with neuromuscular diseases.
“Advancing diagnosis, care and treatment for those living with neuromuscular diseases”
Provides resources for patients, clinicians, and industry.
Provides:
- Rare disease database
- Patient caregiver & resource center
- Patient assistance programs
Advances in skeletal muscle biology in health and disease.
Interdisciplinary researchers, industry, and other institutions work together in collaborative ways to enhance the understanding and treatment of neuromuscular diseases.
The center partners with MDA and coordinates care from a collaborative team of specialists available to the patient.
3 articles published in 2018 outline the overall health care for an individual with DMD including early diagnosis, systems review, primary care, emergency management, psychosocial care and transitions of care across the life span.
A patient-powered registry, the Duchenne Registry is the largest, most comprehensive patient-reported registry for Duchenne and Becker muscular dystrophy worldwide.
Free genetic testing and counseling from PPMD.
- Diagnostic testing
- Carrier testing
