What We’ve Learned

ImagingNMD is closely working with pharmaceutical companies to facilitate clinical trials of new drugs for various muscular dystrophies.

Recent Resources

iNMD Research Results Dashboard
See the demographics of study participants with Becker and Duchenne muscular dystrophy that have contributed valuable data.
researcher going over MRI results with a Becker muscular dystrophy subject
How MR Imaging Improves What We Know about Muscular Dystrophy
MRI is improving our understanding of BMD and DMD. Learn more about how iNMD’s research is helping people with muscular dystrophy.
UF Team Plays Major Role in Success of Newly Approved Duchenne Muscular Dystrophy Drug
Duchenne muscular dystrophy families, advocates and health care providers celebrated a milestone in March with the U.S. Food and Drug Administration’s approval of the first nonsteroidal drug for the treatment of Duchenne.
ImagingNMD Attends TREAT-NMD Expert BMD Masterclass in Spain
ImagingNMD had the opportunity to travel to Spain to hear from other BMD experts through the TREAT-NMD Expert Becker Muscular Dystrophy Masterclass. Learn more about our experience during this conference.
Becker Education and Engagement Day
We're so grateful we had the opportunity to gather together and share care and disease progression insights at Becker Education and Engagement Day (BEED) in December 2023.
Man with Becker muscular dystrophy does an exercise test with a researcher from ImagingNMD
What Exercises Are Appropriate with Becker?
Exercise is a great way to improve your physical and mental health. However, knowing what exercises to do with a Becker muscular dystrophy diagnosis can be a challenge. We’ll cover the most common questions asked about exercising with BMD and some tips on how to get started.
Dr. Claudia Senesac (left) and boy with Duchenne muscular dystrophy (right)
The Diagnosis and Management of Duchenne Muscular Dystrophy: A Guide For Families
In 2018, the Muscular Dystrophy Association, Parent Project Muscular Dystrophy, TREAT-NMD, and the World Duchenne Organisation collaborated and produced a comprehensive Duchenne Guide for Families. Download the guide in English below or in a number of different formats and languages.
profile angle of non-ambulatory adult man with Becker muscular dystrophy smiling
Cardiac Care for Men with BMD
This article describes the role of cardiac care in managing Becker muscular dystrophy—detailing the signs, preventative cardiac imaging, medication considerations, and more.

Videos & Webinars

Development of Imaging Biomarkers for Becker Muscular Dystrophy

Play Video

Pat Chat with Krista Vandenborne

Play Video

Additional Resources

Sign up for regular updates and news from leaders in Becker and Duchenne research.

Click here to stay up to date!

Fighting to end Duchenne, PPMD accelerates research, raises their voices to impact policy, demand optimal care for every single family, and strives to ensure access to approved therapies.

The #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. MDA works to accelerate research, advance care, and advocate for the support of families living with neuromuscular diseases.

Committed to improving the lives of everyone affected by Duchenne through accelerating research to find the cure, improving care and empowering the Duchenne community.

“Advancing diagnosis, care and treatment for those living with neuromuscular diseases”

Provides resources for patients, clinicians, and industry.


  1. Rare disease database
  2. Patient caregiver & resource center
  3. Patient assistance programs

Advances in skeletal muscle biology in health and disease.
Interdisciplinary researchers, industry, and other institutions work together in collaborative ways to enhance the understanding and treatment of neuromuscular diseases.

The center partners with MDA and coordinates care from a collaborative team of specialists available to the patient.

3 articles published in 2018 outline the overall health care for an individual with DMD including early diagnosis, systems review, primary care, emergency management, psychosocial care and transitions of care across the life span.

Click here to download the PDF.

A patient-powered registry, the Duchenne Registry is the largest, most comprehensive patient-reported registry for Duchenne and Becker muscular dystrophy worldwide.

Free genetic testing and counseling from PPMD.

  • Diagnostic testing
  • Carrier testing