What We’ve Learned
ImagingNMD is closely working with pharmaceutical companies to facilitate clinical trials of new drugs for various muscular dystrophies.
Recent Articles
Videos & Webinars
Development of Imaging Biomarkers for Becker Muscular Dystrophy
Pat Chat with Krista Vandenborne
Additional Resources
provides a registry for DMD and BMD, funds research, provides support from a network of experts, educational programing, helps ensure excellence in care in centers around the country and more.
Decode Duchenne Program– free genetictesting and counseling
- Diagnostic testing
- Carrier testing
“Advancing diagnosis, care and treatment for those living with neuromuscular diseases”
Provides resources for patients, clinicians, and industry.
“National task force for early identification of childhood neuromuscular disorders.”
Provides:
- Rare disease database
- Patient caregiver & resource center
- Patient assistance programs
Advances in skeletal muscle biology in health and disease.
Interdisciplinary researchers, industry, and other institutions work together in collaborative ways to enhance the understanding and treatment of neuromuscular diseases.
The center partners with MDA and coordinates care from a collaborative team of specialists available to the patient.
https://ufhealth.org/uf-health-center-pediatric-neuromuscular-and-rare-diseases
3 articles published in 2018 outline the overall health care for an individual with DMD including early diagnosis, systems review, primary care, emergency management, psychosocial care and transitions of care across the life span. Click here to download the PDF.
